{"id":2595,"date":"2014-12-18T17:02:38","date_gmt":"2014-12-18T17:02:38","guid":{"rendered":"https:\/\/farmaciaruizgolvano.com\/?p=2595"},"modified":"2017-06-22T17:31:19","modified_gmt":"2017-06-22T17:31:19","slug":"un-millon-de-gracias","status":"publish","type":"post","link":"https:\/\/farmaciaruizgolvano.com\/?p=2595","title":{"rendered":"Un mill\u00f3n de gracias"},"content":{"rendered":"<p>Hoy quer\u00edamos acercaros un tema que est\u00e1 dando mucho de qu\u00e9 hablar, la enfermedad de Sanfilippo.\u00a0Y es que gracias a la colaboraci\u00f3n de todos los ciudadanos, hoy unas familias est\u00e1n de enhorabuena. Y nos lo han agradecido de una manera muy especial. Durante d\u00edas unos globos que han ido apareciendo durante toda la ciudad nos han tenido en vilo. Pero ya se ha resuelto el misterio. Desde la asociaci\u00f3n de <a href=\"http:\/\/www.stopsanfilippo.org\/\">STOPSANFILIPPO<\/a>\u00a0han colgado todos esos globos para dar las gracias a toda la gente que ha colaborado para conseguir dinero para la investigaci\u00f3n de esta enfermedad.<a href=\"https:\/\/farmaciaruizgolvano.com\/wp-content\/uploads\/globos-leones-jado.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-2597 aligncenter\" src=\"https:\/\/farmaciaruizgolvano.com\/wp-content\/uploads\/globos-leones-jado-1024x1024.jpg\" alt=\"globos-leones-jado\" width=\"431\" height=\"431\" srcset=\"https:\/\/farmaciaruizgolvano.com\/wp-content\/uploads\/globos-leones-jado-1024x1024.jpg 1024w, https:\/\/farmaciaruizgolvano.com\/wp-content\/uploads\/globos-leones-jado-150x150.jpg 150w, https:\/\/farmaciaruizgolvano.com\/wp-content\/uploads\/globos-leones-jado-300x300.jpg 300w, https:\/\/farmaciaruizgolvano.com\/wp-content\/uploads\/globos-leones-jado-480x480.jpg 480w, https:\/\/farmaciaruizgolvano.com\/wp-content\/uploads\/globos-leones-jado-140x140.jpg 140w\" sizes=\"auto, (max-width: 431px) 100vw, 431px\" \/><\/a><\/p>\n<p><!--more--><\/p>\n<p>Vamos a explicar en qu\u00e9 consiste esta enfermedad llama sanfilippo de una manera muy sencilla y en pocas palabras. En este caso esta se produce porque las personas que la padecen carecen de una enzima imprescindible en el ser humano. Al no tener la enzima el producto que esa enzima tendr\u00eda que romper no desaparece. Como consecuencia se \u00a0acumula en el cuerpo.<\/p>\n<p>Por esta raz\u00f3n para conseguir una cura de la enfermedad se necesita investigar much\u00edsimo para poder encontrar una terapia adecuada. En este momento hay varias l\u00edneas de investigaci\u00f3n, que son las siguientes:<\/p>\n<ul>\n<li>\u00a0Terapia G\u00e9nica: Corrigiendo el defecto<\/li>\n<li>Optimizaci\u00f3n del Sustrato (SOT). Si nuestro organismo no puede eliminar un determinado material, porque no transformarlo y convertirlo en algo que si podamos degradar<\/li>\n<li>Reducci\u00f3n de Sustrato (SRT). Si no podemos eliminar el material, y este es t\u00f3xico, tratemos de inhibir su producci\u00f3n<\/li>\n<li>Reemplazo Enzim\u00e1tico. Si nuestro organismo no es capaz de desarrollar de formar correcta las prote\u00ednas para eliminar el material, intentemos suministrarlas<\/li>\n<li>Chaperonas. Ayudando al plegamiento correcto de la prote\u00edna<\/li>\n<\/ul>\n<p>Todos sabemos que la investigaci\u00f3n es muy cara y cuesta dinero por ello con el fin de poder financiar la puesta en marcha de un ensayo cl\u00ednico, la Fundaci\u00f3n Stop Sanfilippo ha dise\u00f1ado una campa\u00f1a. Junto al Colegio de M\u00e9dicos de Bizkaia y otras organizaciones han organizado la campa\u00f1a \u00abUn mill\u00f3n de gracias-Milioi Bat Esker\u00bb. Este ensayo cl\u00ednico est\u00e1 previsto que se lleve a cabo en el Hospital Universitario de Cruces junto al Nationwide Children\u00b4s Hospital de Ohio.<\/p>\n<p>Con esta campa\u00f1a queremos animar a todos los ni\u00f1os y ni\u00f1as a que coloquen en la ventana de su casa unos globos xerigrafiados con el Logo de la Fundaci\u00f3n Sanfilippo y el lema \u00abEskerrik asko\u00bb. Dentro de los globos tendr\u00e1n que meter un papelito con un deseo solidario. Los globos se deben colocar la v\u00edspera de Olentzero y de Reyes. Para que los personajes m\u00e1gicos de la Navidad sepan que ah\u00ed viven ni\u00f1os que ayudan a otros a encontrar un tratamiento para su enfermedad.<\/p>\n<p>Estos globos se vender\u00e1n a 2 euros la unidad y el beneficio \u00edntegro se destinar\u00e1 a la financiaci\u00f3n del ensayo cl\u00ednico.<\/p>\n<p>Solo nos queda pediros que nos ayud\u00e9is a difundir el mensaje. Para que pronto, estas familias puedan encontrar cura para esta enfermedad.<\/p>\n<h2>\u00a1MUCHAS GRACIAS!<\/h2>\n","protected":false},"excerpt":{"rendered":"<p>Hoy quer\u00edamos acercaros un tema que est\u00e1 dando mucho de qu\u00e9 hablar, la enfermedad de Sanfilippo.\u00a0Y es que gracias a la colaboraci\u00f3n de todos los ciudadanos, hoy unas familias est\u00e1n de enhorabuena. Y nos lo han agradecido de una manera muy especial. Durante d\u00edas unos globos que han ido apareciendo durante toda la ciudad nos [&hellip;]<\/p>\n","protected":false},"author":8,"featured_media":2596,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[51],"tags":[],"class_list":["post-2595","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-campana"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.8.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Fundaci\u00f3n Sanfilippo: Campa\u00f1a un millon de gracias<\/title>\n<meta name=\"description\" content=\"Con esta campa\u00f1a queremos animar a los ni\u00f1os a que coloquen en la ventana de su casa globos con el Logo de la Fundaci\u00f3n Sanfilippo y el lema &quot;Eskerrik asko&quot;\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link 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